Hidradenitis Suppurativa – My Treatment and Cure

Hi everyone, I had hidradenitis suppurativa and my hidradenitis suppurativa (HS) was classified as stage 3. Stage 3 is the worst case of HS a person can have. The severity of my HS prevented me from doing normal things and crushed my social life. I was embarrassed to be in public. No matter how long I showered or how much deodorant or cologne I wore, I had extreme body odor. People avoided me and couldn’t bear to be around me. I couldn’t bear to be around myself.

I have tried various methods that I have found by searching the internet and from various doctors. Most, in my opinion and experience, had no effect with this stage of HS. I have been through different surgeries and even radiation, none of which helped.

After so many methods i found what worked for me and from now on i am HS free.

Here is a list of hidradenitis suppurativa treatments that I have personally tried, along with the results for each.

Surgery:

One of the first hidradenitis suppurativa treatments I had was surgery to remove cysts/boils. This left me with horrible scars and no other effect on my hidradenitis suppurativa. About 3 weeks after surgery they were coming back again. I would never have this type of surgery again.

Prescribed by the doctor:

Tetracycline – No effect. The doctor who prescribed it tried this because it is known for the treatment of acne.

Vibramycin – No effect. Again, this is known for acne treatment and also known to be used for sexually transmitted diseases.

Clindamycin – No effect. I am not sure about the normal use of this medicine.

Dapsone – No effect. Primarily known for dermatitis uses.

Dynacin – No effect. acne uses

Prednisone – Helped reduce the size of the boils and reduced swelling. There were no major effects that would make it worth spending the rest of my life taking it. (Not recommended for long-term use.)

Found on the Web:

Zinc – Reduced swelling and the areas seemed a little better.

Vitamin C – Seemed to help control it better, but still didn’t completely cure my HS.

Turmeric Powder with Burdock Root – Another one that helped but not enough to stop my HS completely.

Emu Oil – Oil seemed to make things worse for me. The boils grew larger and oozing worse than ever. I’ve been told that other people have had good luck with it. I surely didn’t.

Aloe – A site I read said to drink it. Another site said to rub fresh Aloe on the affected areas. I tried both. Neither of them worked at all. Drinking it made many trips to the bathroom.

Black Onion Seeds – This seemed to decrease boils but not consistently.

Other methods I tried:

Antibacterial soap: Doesn’t have much of an effect other than helping with hygiene and odor issues.

Isopropyl alcohol: burns if the boils are open. There is no help to get rid of HS completely.

Tea Tree Oil – Another forum recommendation. It had no effect on my HS.

Apple Cider Vinegar/Baking Soda – I tried this because other people have had good luck with it. I personally had no change.

Misc – Other vitamins and supplements. Natural therapies. Nothing that would make a significant change or difference.

Now for the hidradenitis suppurativa treatment that worked:

My diet: Although I was not severely overweight, I was still able to eat better and was able to lose 30-40 pounds.

T-Cell Therapy: This method begins with a gluten-free diet. Once you’ve been on the diet for 14 days (to make sure you’re gluten-free), start taking the courses they provide. Consisting of capsules. The results were not overnight, but I was able to see them within a few days.

In conclusion: I am now completely free of hidradenitis suppurativa. I have not had any incidents or recurrences in the last 7 1/2 months. I never would have imagined that my life would be free of HS. Although I think HS made me a better and more appreciative person overall, I am much happier with my life. I have friends who are not ashamed to be around me. People don’t avoid me because of body odor caused by escaping cysts/boils.

I hope this great success to anyone who reads this, tries it, and it works for them. Always remember, you are not alone. The more people know about this disease, the more research can be done. I hope that one day there will be a more stable hidradenitis suppurativa treatment.